Putting Autism in its Place

There's more than one way to get lit

There’s more than one way to get lit

Autism Acceptance Month includes Light it Up Blue day, and people find themselves reminded, pummeled and delighted by blue lights everywhere. It’s hard to know how to feel about the hoopla when we try so hard not to let autism dominate our lives. That’s why I moved my autism posts to their own blog. To be honest, though, those were the posts that got the most hits when I began writing Lettershead back in 2009. Much as it would lovely to be vastly popular and widely read, Lettershead is about trying to keep some perspective and focus on ideas that are not directly informed by autism.

Autism casts a long, blue shadow, however. Sometimes it feels like I spent my early years escaping the shadow of alcoholism only to turn and face autism. It was good preparation, as it turns out. An anxious person by nature, living with an alcoholic taught me to be flexible and to live with a specific kind of uncertainty about what each day would bring. In recent years I discovered that if I replace the word “alcoholic” with “autistic” in the Al-Anon daily meditation book, it works beautifully, if not in exactly the same way.

The most dangerous thing I allow myself to do is look back and see the years in my between alcoholism and autism and idealize them. I think everyone indulges in this during a standard-issue mid-life re-evaluation. We see high school, college, single life, some point in our youth as something that slipped away accidentally rather than as part of a progression to a fuller life. George Bernard Shaw had it right: youth is wasted on the young. What I’ve come to appreciate by looking back is the value of the cumulativeness of my experiences. For all the randomness of my choices, they all seem to have prepared me for the life I have now, unexpected and unpredictable as it is.

Laurie Anderson said in a great interview with the New York Times that she has “zero time for nostalgia,” and that is a phrase I keep in my head because the world is changing so rapidly that I want our kids to know what the world used to be like without getting myself stuck there. In the process of talking about the past it also occurs to me that for all the good experiences we try to create for other people, we have no control over how they see or will remember it. I have no idea what my parents were thinking half of the time they were raising us, but it’s clear to me now that regardless of their intended blueprint, my own memories were built by me and there isn’t a lot they can do about it now. The reality of a large family is that there are as many versions of the truth as there are people. Our children haven’t even left home yet and they are already constructing versions of their childhood that bear little resemblance to the one I thought we gave them.

And autism? It is a changeable, petulant child all on its own. The disorder I learned about in 1998 is unrecognizable to me. I was not a refrigerator mother, my child’s brain is not empty, limited eye contact does not mean a lack of engagement, and we enjoy a level of love and empathy we were told was impossible. It morphs and changes along with the boy, advancing and receding on a schedule known to no one. It’s a cat, a bowl of Jell-O, a dish of mercury, a block of granite. I will follow it, chill it, contain it, haul it around, chip away at it – whatever it takes to deny it center stage. That’s the job, that’s my job, and every day it will change and still be the same. It’s not something I planned for, but I know it’s what I was meant to do.

Long walk.

It has been a raucous month. Graduation, orientation, parties, beach walks, visits from family, packing for camp, berry picking and even a Supreme Court decision that will go down in history. Now we venture into a July that will bring new things we can’t even begin to imagine and so I offer something comfortingly familiar – June 2012′s edition of a photo I have taken dozens of times in in every season. Few spots are more lovely than Steep Hill Beach at low tide.

On that day a few weeks ago when things were particularly crazy, we were walking up the wooded hill from the beach and as usual I was bringing up the rear, the rest of the family out of sight. Lost in thoughts of all that is to come, I rounded the corner and encountered an older gentleman making his way down the path. Long-sleeved open-collared white shirt with cuffs rolled up, khaki pants, glasses, panama hat. He smiled at me and said in a voice all too familiar,

“Long walk, isn’t it?” His voice had a bit of a midwestern accent, so “isn’t” came out like “idn’t.”

My voice caught a little as I replied,

“Yes, but a good one.”

He nodded.

I wasn’t sure if I was making it up by the time I reached my husband at the top of the path. He raised his eyebrows and said,

“Did you see him? It was your Dad.”

Yes, I think it was.

1919-1992

Today is the 18th anniversary of my father’s death; my mourning has come of age.   The hot days of summer bring back all kinds of memories of him and playing them back and filling in details is a process that seems to dominate every July.  As much as I love him, most of the years we spent in the same house would never make a highlight film of his life.  And as much as he loved me, I am haunted by the bittersweet feeling and misplaced sense of responsibility that there are people and tasks that merited his attention and did not get it.

Depending on how you look at it I was in both the right place at the right time and the wrong place at the wrong time.  Appearing late enough in his life that I offered the joyous, no-strings-attached love of a little girl when such attention was in short supply, and in return I got the attention every small child craves from a parent.  My late arrival also afforded me a front row seat to a mid-life bout with alcoholism whose confusion scattered our family in untold directions.  I found myself adrift and distracted in the eye of the passive aggressive hurricane that characterized my parent’s marriage at that time, my allegiances shifting daily and instilling in me an unsettling certainty that there is no such thing as the whole truth.

His story ends well, with beloved grandchildren, an embrace of cooking, work and friends in the community, and a rekindled friendship with my mother.  She liked to say that the first 15 and the last 10 years of their marriage were worth all that happened between.  As it happens, what happened in between was my childhood. While I maintain that it was a happy one, I find myself sorting through it like a jigsaw puzzle, trying to make the brightly colored, oddly shaped pieces fit.

The inequalities of parental love – or any love at all – are tough to reconcile, and because I have witnessed in other families the carnage that can result when people attempt to settle old scores, I find myself overly focused on fairness and communication with my own children, knowing full well I have no control over how they might view their lives, and my role in them, fifty years on.  But what I carry with me is the sense that my parents, my family, have loved me the best they can, and that I should lift my head from the puzzle and work each day to return the favor.

Tell Me a Story About When You Were a Little Girl

Many nights after we read together, my youngest child will say sleepily, “Tell me a story about when you were a little girl – one that you have never told me before.”   Sometimes I am hard  pressed to come up with a new one, but most times I amazed at how many events I can conjure up – many of them laughably short (“One time my father’s friend George helped us plant corn in our backyard – it grew but the ears were not big enough to eat. The end.”) but still enough to satisfy him.  I know that this is a ploy to keep me in his room long enough for him to fall asleep, and so I talk. . .

When I was small, probably four or five, I moved from the nursery next to my parent’s bedroom on the second floor of our house up to the third floor where the rest of my sisters slept.  Mom turned the nursery into her office, where I spent just as much time playing under her desk as I had playing there when it was my room.  They’d converted the third floor from an attic to bedrooms for their growing family.  There was one small bedroom with a door – a nod to my eldest sister, by then off at college – a larger dormitory room with four beds and then a third bedroom with a double bed through an archway opening off of that.  By the time I moved upstairs, people had shuffled around a bit and the large dormitory room was left to me and my sister B.  It was a sizable linoleum tiled room with a bank of floor to ceiling windows dormered out of the roof.  The windows looked out of the rear of the house and over the rest of the block and the neighborhood down the 11th Street hill.  From it I could see the roof of the little white house next door and the house beyond it, a fabulous, magical Victorian on the corner belonging to the W’s.  Painted a deep gray blue with white trim, I would sit for hours trying to imagine what was behind those gingerbread trimmed windows.  The W. children were all older than me, so my siblings had all been in the house, but by the time I was intereted, all of them had moved on and there was no reason to visit anymore.

The third floor windows opened on long, grooved wooden tracks, which created lovely breezes in summer but also made them rattle in the winter wind.  The train whistles that wafted through them in the night echoed loneliness and adventure, depending on my mood, but the bottom line was that those windows, so full of possibilities in daylight, scared me to death at night.  I felt exposed and far removed from all that was safe.  I wanted to leave the stairwell light on, which drove my sister crazy.  She couldn’t sleep with it; I couldn’t sleep without it.

 “You’re such a baby,” she said.  She was right about that.  I alternately relished and detested my place as the youngest in the family.  Though there is no question that there are many perks to being the last of many children, the cumulative weight of the experiences of the ten who came before me is not a simple burden to bear.  Being spoiled is not the same as being included, and being allowed to play does not teach you to play well or fairly.  Still, all of it was tempered in some way by love and attention, and I am still learning the value of those details as I try to look back and look forward at the same time.

And so, ‘fraidy cat that I was, on many nights I would wait until my sister fell asleep – or until I thought she was asleep – and tiptoe down the squeakish linoleum steps across the soft carpet of the second floor hall in to my parents room at the opposite corner of the house.  There in the king-sized bed my parents would be sleeping with their backs to each other, and I would scramble up from the foot of the bed, across the white coverlet that smelled of bleach to nestle in the valley between them.  I never recall them waking up and shooing me back upstairs, though I am sure there were times that they did, but I do remember bemused conversations in the morning about how I appeared there.

 Some mornings I would lay in their bed and watch my father as he shaved in the bathroom while the morning news was on the television.  There was a local voiceover guy on KWWL who bellowed “Good morning everybody!”  It made a good day a forgone conclusion.  And then came Captain Kangaroo, and Dad, in boxers and shaving cream, would come out and dance next to the television with dancing bear.  It was a magic moment.  Then he would come over and kiss me and I would swoon to the sharp soapy smell of shaving cream. Some times he would take the blade out of the razor and let me imitate him by putting shaving cream on my own face and swiping it off.

On other nights, it was not so much a desire to snuggle that sent me downstairs as abject terror.  I had – and still have – a recurring nightmare that was so real to me that it migrated into my awakened state.  There is a black rock, large and glistening, moving slowly and inexorably toward me.  Everything depends on my keeping that monolith from moving another inch, and yet, no matter how hard I try, it progresses, threatening to crush me in its path.  I remember scurrying to my mom’s side of the bed and shaking her shoulder, telling her in desperate whispers that I needed her help to stop the big, dark rock.   I was tiny enough that, standing up, my face was even with hers on her pillow and I had to reach up to rouse her; she was understandably  groggy and confused, but would cup her smooth dry palm around my check and chin and tell me to climb in and say my prayers and that my guardian angel would come and help me.  I didn’t want my guardian angel; I wanted her, my mother, the person who knew everything and could do anything.

I never turned to Dad at such moments, though I counted on him for other things.  I knew he would love me no matter what; I knew he would never ask more of me than I could give, I knew that the worlds we lived in were somehow different and the same.  I surmise now that he was ruled by a strange mix of fear and obliviousness and that my own greatest fear is sharing his oblivion, of not knowing and conquering my own demons.  My demons are his; my weapons for fighting them are hers, and so there is a battle royal in my head most every day.  And when I lay next to my boy and share my stories, I know that I do have a guardian angel and that she is winning.

More than Veterans

Mom with Lou Friend and Bob Hogan 1943

Last week I wrote about my father’s Navy service (see Overseas) and so today a moment to honor not simply service to our country but the many ways it shaped and created countless lives.  World War II created social structures (our mother with friends at right) and set the stage for a generation that would truly change the world.  A kiss to those who served, and to those who love them.

Here is a link to a new, beautiful song by Mark Knopfler (of Dire Straits fame) to commemorate Armistice Day.

Overseas

Dad in WW2

This is our mother’s favorite photograph of our father. She kept it under the glass on her dresser, along with dozens of other photos of her children and grandchildren.  The dresser was several feet long, allowing enough surface area for a single column of photographs depicting each child from infancy to adulthood.  The picture of Dad was in the upper right hand corner and must have been covered by a jewelry box or a lamp, because I don’t recall ever seeing it until she carefully removed it from under the glass to give to me shortly after my father died in 1992.

He is sitting near a beach in a tee shirt, his sloping shoulders, relaxing tanned arms down to hands resting on khaki-clad knees.  He seems happy.  From a distance it is not clear whether he is looking at the camera, and one might surmise that he is looking off in the distance.  But upon closer inspection it is clear that his shadowed eyes fixed on the lens, and that makes his smile seem a little more self conscious, more guarded, but upbeat nonetheless.  It was wartime in the Phillipines, after all. 

A few years back Steven Soderbergh directed a film set in World War II (The Good German) which he shot using only cameras, lenses and lighting that were available in 1946.  Soderbergh, spoke in the Times about the use of direct incandescent lighting and the unique, noir-ish quality of the shadows that type of lighting and lens created.  This photograph evokes that style, with deep shadows and warm whites depicting men in manly poses wearing simple, military issue clothing.  The ocean waves behind them provide the only patterns.

Who took the photograph and the identity of the man on the left remains a mystery; my mother didn’t know either, which I find particularly odd.  But it suits his overall story, I suppose, for he was a man with many friends, many stories and a selective memory.  Born and bred in the landlocked Midwest, he left his college career and enlisted in the Navy after Pearl Harbor, and shipped off first to Philadelphia and then to Manila.  I surmise that one of the reasons my mother loved this particular photo is that, besides showing him as he was when they first met, it captures on his face his love of the sea, his joy and satisfaction at being part of something big in a place an Iowa man would never expect to find himself.

But for all of his stories, and his gift for telling them, his war years remained largely a mystery, at least to me.  He watched every WWII documentary, read every book about it, but the only details he shared with us were with maps, showing us the islands he went to, and sometimes the kinds of ships he guided as a harbor pilot.  Some of my siblings, in search of an explanation for the years that followed, theorized that that happened in the war drove him to drink later in his life.  When he lay dying, one of them plucked up all of his courage to ask what happened in the war, what sort of injustices led him to the bottle.  The answer was wholly unsatisfactory.  That was just who he was, he said; there wasn’t a reason, no deep dark secret.  He drank because he liked to, needed to, and he stopped drinking when it stopped helping.  It sounds so simple, so unarguable, when put in those terms.  Even so, there are those that believe he simply was not willing or able to talk about all of his war experiences.   So all we have is the photo hidden in plain sight until it was too late to find out the story behind it.

Early Release

Once or twice a month we would be dismissed from school at 1:30 so that there could be a teacher’s meeting.  We were savvy 7th graders, done with the playground flirtations of 6th grade – we wanted to spend the day downtown.  Only a few blocks from our school, our Main Street was like every other in the Midwest, with lines of brick turn-of-the-century buildings, numbered cross Streets and mom and pop stores increasingly aware that they were a dying breed.  Still, the seventies were taking their toll on Main Street, holding disappointments and surprises along the way.  Already losing ground to the new mall on the other side of town, the city planners had torn up the straight main street and made it curvy and added modern multi-globe street lights and more stop lights in hope of drumming up business for the merchants who remained.

It was perfect for us.  We could walk from home and school and spend a whole afternoon making our way from the Library at 5th and Main to the Regent Theatre at 2nd street.  The Regent didn’t show matinees on weekdays but we would always check the coming attractions (anything from Annie Hall to Gone With the Wind) and come back on the weekend.

Pockets loaded with allowance money and whatever we could scrounge from our mothers’ change drawers, my best friend and I would recruit any of our other friends who wanted to go and hurry to our first stop, the Public Library.  We bounced down the street in those days before 60 pound backpacks, iPods and cell phones, elated to know that we were free of nuns, coaches, and parents until suppertime.  That was true every day, of course, but going downtown on our own was a special freedom, one that allowed us to peek through windows and doors and make a short foray beyond the neighborhood.

The library was an old blond brick building with a modern addition that had large widows and thick carpet on which you could run through the stacks without being heard.  I loved the books with their gold embossed spines or jackets covered in cellophane, so much so that I often hated parting with them – much of my allowance went to library fines. It was understood that, even though we were old enough, there were certain books in the adult section we weren’t supposed to check out, and so we would snatch the romance novels off of the rack near the front desk and sneak them to the back stacks so we could read the steamy parts.  No elegant binding here – they were well-worn paperbacks with titles like The Wolf and the Dove and The Flame and the Flower (which, incidentally, are still in print and have dozens of reviews on Amazon).  Occasionally one of my friends would actually smuggle one out the library in her jacket, but I never dared.  It would not have been worth getting caught.  My mother had already given me permission to check out my beloved Hollywood biographies (over the objections of the nuns at school) and there was no way I would give up access to Marilyn Monroe, David Niven and Judy Garland for a cheap thrill.

On to the soda fountain at Hieber Drug.  Located in one of the older storefronts, it had high stamped tin ceilings with black fans twisting lazily overhead.  There was no more empowering experience than to hoist ourselves up on the black leather swivel stools, rest our elbows on the cold marble countertop and order a green river or a root beer float.  With enough green dye to make you glow in the dark, green rivers were all fizz and no flavor but they looked spectacular in the curvy soda classes.  The root beer floats had a thirties moonshine look in the thick mugs; I still love silky vanilla ice cream against sharp, foamy root beer.  Dog ‘n Suds, the yellow neon drive-in restaurant across town, couldn’t hold a candle, neon or otherwise, to a countertop float at Hieber’s.

Beyond the delights of the soda fountain there was a certain mystery to Hieber’s.  I never saw my father there, but I knew he bought greeting cards and stale Whitman’s chocolates from Hieber’s for my mother on holidays, and as the years progressed she was less charmed and more annoyed by these offerings (I, of course, was charmed – Whitmans had a map on the top of the box so you knew what each chocolate had inside).  Reading the cards, with their cellophane overlays and cursive poetry, I could not quite connect the sentiments found in them to my parents.  The inscription didn’t match the tone of their banter when they got along nor the smoldering resentment when they didn’t.  My mother would remark pointedly on Mother’s Day, “I am NOT your Mother.” He would just chuckle and I would giggle, too.  It wasn’t really the cards; he would call her Mom all the time, just like us, using pretty much the same tone.  He called his own mother Gramma, too. Once we were grown and moved to the city to be near the grandchildren, he never skipped a beat – he called her Grandma, which also drove her crazy.  I can count on one hand the number of times I heard him call her by her given name.

Anyway, I always thought about my Dad stopping in at Hieber’s and wondered what he did there, whether the knew the man behind the counter or the one who was always smoking in back.  Hieber’s smelled like hair tonic and alcohol and newspapers and reminded me of our town as I imagined it was in the 20s or 30s, as if Bonnie and Clyde might walk in the door any minute.  Dad loved to tell stories about those times.  After 25 years of marriage to a native Iowan, my mother, a transplant from Philadelphia, had clearly had her fill of Old Iowa stories and whenever he began to wax nostalgic we all rolled our eyes and groaned as if we would die of boredom if we ever heard any of them again.  But truth be told we all loved the stories (like the one about the Indians who were allowed to come into the Mains Street stores and take whatever they wanted), Mom included; it was the way he told them in this phase that wearied us – it was like we weren’t even there, he would just drone on, as if nothing in the current day – including us – interested him much.  We were young; our lives were too exciting to be drawn to sepia tones.  Many years later, the fog of middle age long lifted, he would tell all of the stories again on a single afternoon, the colors and joy refreshed as he spun them, his voice animated and his audience rapt.

Time to cross the street and blow some money at Ben Franklin.  Straddling that odd place between childhood and adolescence, we debated among Play Doh Fun Factories, Barbie Dolls, Rona’s Barrett’s Hollywood, Billboard and Rolling Stone magazines.  Usually we got magazines because they were cheaper and easier to share, but I did buy my only Barbie (Malibu) on one of those afternoons, more as an act of rebellion since my mother refused to buy them. Plus, my friend had scores of them with a house and everything, too, so I wanted to show up at sleepovers with, at the very least, my own perfectly tanned Barbie.

Hungry again.  On to lawn City Bakery for fresh long johns from Mr. Lang.  Long johns were puffy, rectangular shaped fried dough with a long perfect smudge of white icing on the top.  With our big family, we had long since abandoned homemade birthday cake, but no matter.  Mr. Lang’s cakes were Crisco and white sugar heaven with red icing roses.  The roof of my mouth still hurts when I think of the all-frosting bites that I saved for last.  Say what you want about the dangers of fluoridated water – it’s the only reason I still have my teeth.  Mr. Lang had developed an allergy to flour over the years and had to keep his arms and hands completely covered when he baked.  It looked a little odd in the days before everyone wore gloves when handling food, and I wondered if the allergy kept him from eating all of those wonderful sugar-filled deep fried confections.

Before we entered the bakery, I would glance across the street at the open door to Vic’s Tap and wonder who would want to be in such a dark place in the middle of the day.  The sounds of deep voices and clinking glass spilled out onto the street, along with the odor of beer and cigar smoke.  Even as the warm sweet smell of the bakery pulled me in, I parsed the familiar and unfamiliar smells from Nick’s.  Cigarette smoke, bourbon, whisky and gin were good smells: beer and pipe smells were musky, strange and unwelcome.  The former conjured up images holiday gatherings and of parents just home from a party.  A hug wrapped in chilly winter mink, Kent cigarettes, Old Crow, and Chanel No. 5; a smiling smooth cheek damp with scotch and Old Spice.  Later, my husband would imbue romance into beer and cigarettes but then it seemed that beer smelled old and stale even when it was fresh; spirits never lose their luster.

Sometimes we would stop by the Hotel Black Hawk to poke around in the lobby.  What the mall was doing to the merchants, the Holiday Inn and the Howard Johnson’s out on highway 218 had done to the Hotel.  It was mostly residential now, a kind of stepping stone to the local nursing home, called the Western Home (I always imagined that it had swinging saloon doors and looked like the set of Gunsmoke, only with wheelchairs).  With its black and white tiled lobby and cloudy front windows, the Hotel still had a lot of folks coming and going.  My Mom rented one of the offices off the lobby for the local Birthright organization.  She met with girls and women who were pregnant and needed support, money and a place to have their babies.  It served her purposes perfectly – anonymous but still easy to find.  It was very simply furnished with a desk, two chairs and a black rotary dial phone that looked just like the one in the Birthright logo.  She was seldom there at this time of day, though, and usually we moved fairly quickly out of the Black Hawk lobby and back onto the street to check out the movie theatre and then head home before dark.

Double Solitaire

I wrote this a few years ago. Today is the seventeenth anniversary of my father’s death.

The journey began simply, with a round of Go Fish. I was playing cards with my eight-year old daughter while her younger brothers paraded around the living room to Souza marches, wooden spoons in hand serving variously as batons, trombones, flutes and drumsticks. As the boys circled the sofa, we played our game. It progressed quickly; the cards had been poorly shuffled from the last game and she won. She leapt up to join the parade, leaving me to shuffle and put the cards away. I watched them march happily as I shuffled the deck and, without thinking, laid out a row of seven cards in front of me.

As I dealt the cards for solitaire, in my mind the cotton tablecloth turned to smooth polished cherry, the track lighting to a china lamp on my left and our dining room to a corner of the living room in our family house in St. Louis. Across from me I saw my father, playing his own hand of solitaire, deftly, seriously, quickly. It was the early 1980s and in those days we played double solitaire endlessly. He would play with anyone who was willing and as we sat in the delicate but sturdy cane chairs that my mother painted with pastel flowers on a black background before she married, the hours and the cards flew.

The games were fast-paced and good-natured but there was a frenetic quality to them.
It was the closest thing to exercise I ever saw Dad engage in (we used to howl at his morning calisthenics, which consisted of making tiny circles with outstretched arms and toe-touching that somehow never involved actually bending over). But when my turn was over and I observed him playing with my Mother I saw that he wasn’t playing, he was working.

Mom said he was learning to think again and she was right. The old ways of thinking and doing had washed away in a flood of booze, and now that the tide had receded he was repairing the damage, repaving the mottled roads in his brain. Decks of cards and stacks of encyclopedias and dictionaries crowded his side of the table and the library table behind the winged back where he spent his afternoons. When he wasn’t playing cards he was completing crossword puzzles, one right after the other. That’s how he filled his days during those early years of their retirement. He was learning to live again and he did it one puzzle, one game at a time. We bought new decks of cards when the old ones wore out and kept him supplied with crosswords and new, more specialized dictionaries for finding the right words: rhyming dictionaries, medical dictionaries, crossword dictionaries, thesauruses.

In time he turned his attention away from the cards (the puzzles remained, always) and began watching more television, which seemed like a step backward at first. He watched Wheel of Fortune and the Price is Right, Lawrence Welk and Hee Haw, and then, gradually, The Cookin’ Cajun and The French Chef. I had moved away by then and when I came to visit, it was he and not my mother who made dinner and traded recipes with me. The man who, throughout my childhood, hated onions and ate canned pears with cottage cheese every night was cooking with garlic, fresh thyme and sesame seeds. Hershey bars smeared with butter (no kidding) gave way to sorbet, oysters on the half shell and homemade soup. After almost 40 years of cooking my mother was thrilled to turn the kitchen over to him, and he gave me my first serious cookbook, Craig Claiborne’s New York Times Cookbook. It’s out of print now.

But those card-playing days started it all. They were his entry back into the family after years of physical and emotional absence. Typical of his generation, there was no twelve step process or open acknowledgement of alcoholism. Instead there was a new, carefully constructed companionship: rides in the car, casual meals out, shared books on history, stories told of World War II and a life lived mostly in small town Iowa. There was reading, punctuated by snoring, before the well-tended fire. And with his grandchildren he renewed the sweet rituals of our childhood with trips to the five and dime for treats and baseball cards, and long babies’ naps on his ample lap. Through all of the years he never lost his gift for calming babies.

Who is to say what makes someone withdraw for years at a time and then suddenly awaken? Watching him is as close a look as I’ve ever gotten to the door between this world and the one where depression stifles every impulse to live and connect. I sense it sometimes, the numbing sensation that makes me want to bury myself in the newspaper instead of tend to the responsibilities of daily life. That feeling of being wholly unequal whatever task life presents, however simple and achievable it may be, it is almost impossible to stop the sense of inner implosion once it has begun. Sometimes it takes an hour to ride it out, sometimes a day, sometimes a month. Only when I have emerged on the other side can I see where I’ve been and try to decipher what it was that brought me back into the light.

I observe Our Boy with autism and I cannot help but wonder if my father is lurking in the foggy netherworld that sometimes envelopes him. He inhabits both worlds at the same time and is somehow at home and a foreigner to each one in a single moment. I know that science will never draw a line between alcoholism and autism, but I cannot help thinking there is something about filling an inner void that characterizes them both. There are moments when I look into Our Boy’s eyes and see my father looking back at me, hurt, bewildered, obstinate. To see Our Boy is to view human emotion distilled down to the essence, he knows the purest joy, the greatest sadness, the deepest confusion, the wildest rage, and all of them change as swiftly as the New England weather. There isn’t any meanness and guile, though there is selfishness and manipulation, and this was so true of my father too. He wanted to achieve but he only really knew how to give and as a result he gave away most of what he had, and then some. It was only when his body began to break and the expectations were gone that he found the opportunity to seek and out and be who he was. I think that is what we will have to do for Our Boy – create for him the world where he can be. Ironically, perhaps, autism will give him that freedom, for no one expects him to be any more than he is, though we will fight his oblivion every day so that he can be free to communicate his needs to the world in hopes that they might be met.

We can try to give Our Boy what I could not give my father and what he was incapable of asking for. He wanted only to get along and be loved by those he loved, and in 20th century America that wasn’t enough. The rags-to-riches American dream eluded him, but he loved and was loved in the way that only the impenetrable Irish male can. His body and his brain succumbed to addiction and depression and when the physical pain cut through the numbness – when it was more painful to be drunk than sober – he dug his way out and started over. And lucky for him there were people there to meet him on the other side and play cards with him. When Our Boy is ready to play I will be at the table, waiting.